Frequently Asked Questions
Still Have Questions? - Ask Us: Jill MacKinnon@miami.edu
FCDS is Florida's statewide cancer surveillance system. FCDS was legislatively mandated in 1978 to collect incidence data on all cases seen in Florida since 1981. The goal of FCDS is to reduce death and illness due to cancer by providing data on cancer incidence. These data are used to observe cancer trends and provide a research base for studies into the possible causes of cancer.
Florida statute requires all malignant cancers reportable with the following exceptions- In situ carcinoma of the cervix (CIS), intraepithelial neoplasia grade III of the cervix (CIN III) and intraepithelial neoplasia of the prostate (PIN III) are not reportable. Basal and squamous cell carcinoma of non-genital skin sites are not reportable regardless of extent of disease at the time of diagnosis or the date of first contact with the reporting facility. Reportable on or after diagnosis date of 01/01/2001 are Intraepithelial neoplasia Grade III of vulva (VIN III), vagina (VAIN III) and anus (AIN III) and Myelodysplastic Syndrome (MDS). All patients with an active, benign or borderline brain or central nervous system (CNS) tumor, diagnosed on or after 01/01/2004, whether being treated or not are reportable. All cancer cases diagnosed and/or treated in Florida since 1981 must be reported to FCDS.
FCDS requires that the data collected include information which indicates diagnosis, stage of disease, medical history, patient demographics, laboratory data, tissue diagnosis and radiation, surgical or other methods of diagnosis or treatment for each cancer diagnosed or treated in Florida.
According to Florida Statute 381, Public Health: General
Provisions, "Information submitted in reports required by this section
is confidential, exempt from the provisions of s.119.07 (1) and is to
be made public only when necessary to public health. A report so submitted
is not a violation of the confidential relationship between practitioner
All facilities licensed under FL statute 395 and each freestanding radiation therapy center under statue 408.07; All ambulatory surgical centers as specified by Rule 64D-3.006; Any licensed practitioner in the state of Florida that practices medicine, osteopathic, chiropractic medicine, naturopathy or veterinary medicine are required to report under Chapter 381 or any laboratory licensed under chapter FL statute 483 that diagnoses or suspects the existence of a cancer. See our Law and Rules page for more detail.
Data collection (abstracting) must be performed by trained personnel. Certified Tumor Registrars (CTRs), abstract most of the cancer cases in the state. Other data collection personnel are trained by FCDS or though other recognized training programs.
Yes, FCDS offers an Education and Training page for incidence abstracting. The FCDS incidence abstracter training covers the minimum basic material required to execute Florida incidence abstracting. We also host several teleconferences a year. See our What's New page for current events. Our Downloads page has archived teleconferences. Contact FCDS at (305) 243-4600 for details.
Cases are reported to FCDS electronically. FCDS
follows nationally recognized reporting protocol to assure consistency
in case reporting from facility to facility.
FCDS policy requires that Florida health facilities report cancer cases at least quarterly.
FCDS data are used by approved researchers, health planners,
epidemiologists, physicians, Florida legislators, medical students and
a variety of other qualified parties.
Contact Us page for more detail.
Contact the American Cancer Society at 800 - 4CANCER (800-422-6237)
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Direct any comments or questions to Jill MacKinnon, Project Director and Principal Investigator.